These are resources that were mentioned or came up during our sessions, posted by Alan. Consider this as "additional reading" resources.
Session 1 - History of the Disability Rights Movement
- My Friend Charlie - by Nate Hajdu - shared by Sue Swenson about her son, Charlie
- A Tale of Two Districts - An NPR story, shared by Penny Fitzmaurice (c/o 2025)
- Dignity of Risk - an article from Oregon ISP (by The Arc Oregon)
- Barbara Gill - Changed By A Child -- Book recommendation from Sue Swenson
- HeartMath - recommended for caregivers
- United Nations - Convention on the Rights of People with Disabilities
- about Ed Roberts - the "Father" of the Independent Living movement
- State of the States in Intellectual and Developmental Disabilities
- Oregon Center for Children & Youth with Special Health Needs
- Oregon Community Brokerages -- learn more about what Brokerages are
- Oregon DHS - list of Community Developmental Disability Programs (CDDPs) -- often provided by the county
- Children's In-Home Intensive Program -- learn about this Oregon program that Hailey shared about
- Closure of Eastern Oregon Training Center (2009)
- Youth IDD/Mental Health Summit - hosted by The Arc Oregon (August in Corvallis)
- Central Oregon Disability Support Network (CODSN) - mentioned by Solimar
- Quad Inc. - mentioned by Kelsey
Sue's Script
- Open with something that shows credibility
- Then something that shows caring
- Make the ask
- Follow-up
- (It takes 7 follow-ups to get your point across)
- Keep it to 90 seconds.
- People don’t like to feel attacked or to be told they don’t understand you.
Class of 2027 - Our Group Agreements
- Use the microphone
- Be respectful
- Keep an open mind
- Be mindful of time & Share the Air
- Trust each other to know our own bodies
- If you or someone in your family is sick, communicate it.
- Honesty, Diversity & Inclusion
- Include everyone – read the room
- It’s okay to disagree
- Stories stay, lessons leave
- Avoid strong fragrances
- Lead with curiosity
- Don’t touch other people’s belongings
- Give space for opportunities to slow down